Tuesday, January 7, 2020




   This is where I have been spending a lot of my time recently.  Yes, in bed with or without my Midgy and Patchy.  I have been exhausted, sore and have stimulation overload all at the same time which then leads to insomnia followed by long periods of needing to just collapse and sleep.

   Today is the first day in a long time where I feel like I am able to pull back the thick "fibro fog" curtain and feel semi functional.  I have been able to do some laundry and actually compose some coherent thoughts, which is a huge blessing and accomplishment unto itself.  The headache that I have had for 2 days is finally starting to settle down too.

   We are heading into at least a week long snow event starting within the next day or so where I will be homebound.  I do not like to travel on snow covered roads as it makes me extremely nervous.  I am hoping that Jeff and I can head into town later to do some last minute stocking up on a few things we need before then.  We just need a few basic items like milk, fresh veggies and plain yogurt.  Other than that, I am well stocked between my freezers and pantry.

   One of the hardest things to deal with when living with Fibromyalgia and/or Chronic Fatigue Syndrome is the unpredictability of it.  You can feel semi normal one minute and the next you can be laid out flat.  Anything, and I mean anything, can trigger a flare.  Weather, other illnesses, lights, noises, smells, stress, or even taking one step too many are all factors.  I find that when my hubby's work schedule changes, like over the holidays, that can also trigger a bad flare.  We have had 2 weeks of changes with the holidays and that threw me way off.  We are finally back to his normal work schedule, but then we have this storm moving in so I am preparing for another bumpy ride. 😔

    I've been trying to make triple batches of many of our meals and freeze the extra portions to use when I just don't have the energy to cook.  For me, cooking is therapeutic and something that I really enjoy doing.  It is the last of the things that I can still do to make me feel "normal".  I show my love to people through feeding them, so this is very important to me.  Having those meals ready to go helps to alleviate some of the guilt I feel for being so ill.  And yes, even though I know this illness is not my fault, I still do feel guilt.  I have been working on that. 😉

   Anyway, I am off to shower (and praying that does not wear me out) so that I will be ready IF my hubby wants to make a trip into town today.  Be blessed!


   

13 comments:

  1. I am sorry, my arthritis is the same way. Will it flare? Will it not? If it does for how long? Every day is a circus.

    ReplyDelete
    Replies
    1. Winter is a hard time for a lot of us it seems.

      Delete
  2. So sorry you have to go through this. I have fibromyalgia and heart problems and yes almost anything can trigger a flare or an irregular heart beat. Some of my worst ones are weather changes, not sleeping well, not eating well, stress and frustration. Dealing with people is hard too or groups. I have had to stay in more this winter and be more careful because my immune system is so low. I had Shingles three times last year and whooping cough for 3 months. Take care and snuggle with your kitties and a nice soft blanket. Treat yourself with love and praying you'll soon feel back on track.

    ReplyDelete
    Replies
    1. Oh my goodness, that does not sound fun at all. Praying that you have a much better year this year.

      Delete
  3. Happy New Year, Debbie, even though I am a bit late to wish you. Those two kitties look adorable! I'm glad you are starting to feel a little better; I hope it continues. Take care of yourself.

    ReplyDelete
    Replies
    1. Thanks Bless! Those kitties are sticking really close and cuddling more at night now that the temps are dropping.

      Delete
  4. I'm always cheering you on any time you post. Take good care of yourself and listen to your body.
    I've been in CA since Dec17th and have had more crashes then all of last year. I'm thrilled to be with people but not used to the energy needed. The friends i'm visiting are like my brother and sister. We knew each other in college and I had the privilege to be a bridesmaid in their wedding 40yrs ago. Another three weeks here and I'm treasuring each day.

    I started a 7 day trial today that my specialist doctor agreed to. Will know in a week if it's going to help. Will write more if it does.
    Sending hugs and prayers,
    SJ in Vancouver, usually

    ReplyDelete
    Replies
    1. PLease do let me know how that trial goes and I am really hoping your flares slow down. I want you to be able to enjoy every minute there but also get the rest you need. Hugs to you too!

      Delete
  5. This comment has been removed by a blog administrator.

    ReplyDelete
  6. This comment has been removed by a blog administrator.

    ReplyDelete
  7. This comment has been removed by a blog administrator.

    ReplyDelete
  8. This comment has been removed by a blog administrator.

    ReplyDelete
  9. This comment has been removed by a blog administrator.

    ReplyDelete

Thank you for taking time to comment on my blog posts. I really appreciate it and being able to get to know you through your comments. I hope you have a wonderful day!