tag:blogger.com,1999:blog-2283658887503348180.post1113985925844434817..comments2024-03-16T10:18:51.784-07:00Comments on The Next Chapter In My Life: Frenetic Fibromyalgia MomentsDebbiehttp://www.blogger.com/profile/16449564619872452771noreply@blogger.comBlogger32125tag:blogger.com,1999:blog-2283658887503348180.post-89988244986739806392017-11-10T13:29:03.136-08:002017-11-10T13:29:03.136-08:00Thanks Meg. :) My hubby has a long weekend starti...Thanks Meg. :) My hubby has a long weekend starting tomorrow so I am really being careful to rest up so we can do something fun this weekend. I hope you have a wonderful weekend my friend!Debbiehttps://www.blogger.com/profile/16449564619872452771noreply@blogger.comtag:blogger.com,1999:blog-2283658887503348180.post-33703881663099336252017-11-10T13:27:03.764-08:002017-11-10T13:27:03.764-08:00Thank you Kim. :) It does help to get them all ou...Thank you Kim. :) It does help to get them all out there in the open and I hope that by my sharing, it will help other people too. Be blessed!Debbiehttps://www.blogger.com/profile/16449564619872452771noreply@blogger.comtag:blogger.com,1999:blog-2283658887503348180.post-27755532397225287972017-11-10T13:26:02.275-08:002017-11-10T13:26:02.275-08:00Thanks so much Bless. I am still taking it easy t...Thanks so much Bless. I am still taking it easy today. When I am not in one of my frenetic moments, I can just accept that whatever I can't get done today will be there for me tomorrow. In those frenetic moments however, all common sense goes right out the window because it becomes a compulsion to get things done "no matter what". I am learning that is also part of this disease and is fairly common among CFS and Fibro people.Debbiehttps://www.blogger.com/profile/16449564619872452771noreply@blogger.comtag:blogger.com,1999:blog-2283658887503348180.post-54267907260687848712017-11-10T12:43:43.767-08:002017-11-10T12:43:43.767-08:00Health challenges can really make things very toug...Health challenges can really make things very tough sometimes, even more so when they are ongoing or lifelong. I think it's really good that you know your illness well and that, through sharing the reality of it, others can understand. I hope tomorrow is a better day for you. Meg XxxMeghttps://www.blogger.com/profile/11573371198907761962noreply@blogger.comtag:blogger.com,1999:blog-2283658887503348180.post-8067781837144588642017-11-10T11:44:35.241-08:002017-11-10T11:44:35.241-08:00I am so sorry that you have to deal with this terr...I am so sorry that you have to deal with this terrible disease. I think it is so important that you listen to your body. I also think it's wonderful that you share your thoughts. Getting them out and receiving some encouraging feedback can go a long way in helping your emotional health. Thinking of you my friend and hoping for better days. :)Kim https://www.blogger.com/profile/15445291034631735026noreply@blogger.comtag:blogger.com,1999:blog-2283658887503348180.post-90798205427651195762017-11-10T11:42:46.536-08:002017-11-10T11:42:46.536-08:00(((HUGS))) Debbie. I am so sorry you have to go t...(((HUGS))) Debbie. I am so sorry you have to go through what you are experiencing, but I am glad you are taking it easy when you can. You do need to learn how to pace yourself and rethink what needs to be done and what can be left undone. I am learning to do that, myself, figuring out how to prioritize things and learning the difference between what needs to be done vs. what I would like to have done. Not always easy, but learning to compromise is a good thing. Hope today is a good day for you. Take care.Blesshttps://www.blogger.com/profile/16369267622517848850noreply@blogger.comtag:blogger.com,1999:blog-2283658887503348180.post-23113086735754349042017-11-09T22:37:58.353-08:002017-11-09T22:37:58.353-08:00Thank you Marilyn. :) (((((HUGS)))) I long for a...Thank you Marilyn. :) (((((HUGS)))) I long for and miss the "old me" if that makes any sense. I know that there are so many things that I can no longer do, trips I cannot take, hikes I cannot go on but I can still spend time with my loved ones, encourage friends going through rough times and celebrate the good times with them too. I won't lie, today has been a very non productive day, but you know, it's ok. I knew it would be and my hubby is amazing and told me that he is very glad that I listened to my body and rested. I pray for healing for you my friend too! Thank you for being there for me. :) Debbiehttps://www.blogger.com/profile/16449564619872452771noreply@blogger.comtag:blogger.com,1999:blog-2283658887503348180.post-63425853891738831382017-11-09T22:26:33.183-08:002017-11-09T22:26:33.183-08:00Oh dear Debbie, as I read your post, I could just ...Oh dear Debbie, as I read your post, I could just feel the difficulty you experience each day with this terrible debilitating disease! I have several friends with the same disease and it does make life just so very difficult, because you want to go and do things like anyone else, but the ugly cycle in your body doesn't allow that. I am so thankful you have such a good support system, and just by sharing your experiences here, I can see in your comments that you are blessings others by doing so. I pray for you dear friend, and hope this flare passes soon! With much love and hugs! Marilyn @ MountainTopSpicehttps://www.blogger.com/profile/00600290895531484438noreply@blogger.comtag:blogger.com,1999:blog-2283658887503348180.post-47602064319639522682017-11-09T21:34:50.025-08:002017-11-09T21:34:50.025-08:00Did you know that there are over 200 symptoms asso...Did you know that there are over 200 symptoms associated with fibromyalgia? Here is a link to a list of some of them. https://www.facebook.com/notes/lynette-hazeltine-davis/200-fibro-symptoms/10152384886461019<br /><br />I did not have the intense pain that I do now when I first got this disease. In fact I did not know that all the symptoms I had for years were all part of this. I can see the progression of my disease when I look back at my life and what was going on at different times. Please do continue to rest when you can and not over do it (like I do...I am my own worst enemy at times). Isn't it funny how sometimes just resting for even half an hour can help us feel better some days and other days, it can take weeks to recover. I love how you put it "I'm learning new ways to do life". That is perfect and something that I am also learning. Be blessed!Debbiehttps://www.blogger.com/profile/16449564619872452771noreply@blogger.comtag:blogger.com,1999:blog-2283658887503348180.post-51250358427978393272017-11-09T21:25:41.551-08:002017-11-09T21:25:41.551-08:00:) Your comment made me smile Debbie. I wish I h...:) Your comment made me smile Debbie. I wish I had a clone too that could do all the housework. With my luck, my clone would have what I have too though and we would need matching soft recliners to veg out in. ;) I do hope that you take time for yourself to relax and recharge. A nice bubble bath, a glass of wine...not that sounds heavenly!Debbiehttps://www.blogger.com/profile/16449564619872452771noreply@blogger.comtag:blogger.com,1999:blog-2283658887503348180.post-89633232864229404492017-11-09T21:23:04.086-08:002017-11-09T21:23:04.086-08:00Thank you Paula. You are so sweet!Thank you Paula. You are so sweet!Debbiehttps://www.blogger.com/profile/16449564619872452771noreply@blogger.comtag:blogger.com,1999:blog-2283658887503348180.post-50633923669569259182017-11-09T21:22:32.279-08:002017-11-09T21:22:32.279-08:00Awwww thank you. That picture of the boys makes m...Awwww thank you. That picture of the boys makes me so happy too!Debbiehttps://www.blogger.com/profile/16449564619872452771noreply@blogger.comtag:blogger.com,1999:blog-2283658887503348180.post-18352515184725777522017-11-09T21:21:30.473-08:002017-11-09T21:21:30.473-08:00Crystal, I can so relate to everything you wrote t...Crystal, I can so relate to everything you wrote that you are going through also. I take Potassium and get my blood work done every 6 months to monitor my thyroid and everything else. I have to make sure that my vitamin D levels stay in the normal range because they have been critically low in the past. As for the clothing...oh my goodness. Yesterday I had to put a bra on to go down to the library and I kept telling myself that I could take it off as soon as I got back home. I went through 3 shirts until I found a very loose and soft cotton one that did not irritate my skin and put on the softest underwear and pants that I had also. Today I just stayed in soft jammies and have been cuddling up under a cozy throw. I have not done a thing but be kind and rest because I was not able to get to sleep until about 5:00 this morning (tossing and turning in pain and not even the pain and sleep meds helped) and was up by 7:30 with the fur babies. I pray that you were able to take things easier today also. (((((((HUGS))))) and healing prayers.Debbiehttps://www.blogger.com/profile/16449564619872452771noreply@blogger.comtag:blogger.com,1999:blog-2283658887503348180.post-68739295437142135222017-11-09T21:10:41.720-08:002017-11-09T21:10:41.720-08:00Becky, I never ever want you to get this either. Y...Becky, I never ever want you to get this either. You my friend have enough going on with all you deal with already. I get what you are saying about being afraid to eat something without getting sick. When my IBS is flaring, I am terrified of eating something or anything for that matter that will just make it worse. I have trouble with my blood sugar levels dropping down really low but can also tell when I have had too much sugar...I feel sick and almost hungover. Yes, I am being monitored for diabetes because it runs in my family. I try to keep my blood sugar levels at a good and even level. I really am so glad that you have a good support system. It really makes a huge difference! Be blessed my friend!Debbiehttps://www.blogger.com/profile/16449564619872452771noreply@blogger.comtag:blogger.com,1999:blog-2283658887503348180.post-90291956411459093312017-11-09T20:54:39.143-08:002017-11-09T20:54:39.143-08:00Very interesting article. Thank you for sharing yo...Very interesting article. Thank you for sharing your struggles and journey! I was diagnosed with Fibro about 3 years ago and then neuropathy this past year. Sometimes I wonder if they misdiagnosed me because my symptoms are not as bad as others I read about. I have burning joints, stiffness and achiness, brain fog at times, burning feet and legs, restless legs at times. I can end up in a lot of pain from overdoing it but my symptoms lessen when after I rest a while. I guess it is what it is. I am learning new ways to do life. A Woman that Fears the Lordhttps://www.blogger.com/profile/09028148446621304362noreply@blogger.comtag:blogger.com,1999:blog-2283658887503348180.post-83550605570547766892017-11-09T10:41:36.381-08:002017-11-09T10:41:36.381-08:00I can completely understand your need to get thing...I can completely understand your need to get things done when you can, Debbie - I can't imagine having that, it must be awful some days. I know how desperately I try to do as much as I can in the mornings before work, and the same on weekends....sometimes I feel guilty when I sit down to read a chapter of a book, as there are so many things to do! That's why I always say I need a clone....so I can read all the books AND get everything done! :)Debbie - Mountain Mamahttps://www.blogger.com/profile/18401931842031353732noreply@blogger.comtag:blogger.com,1999:blog-2283658887503348180.post-33980160037064205252017-11-09T09:52:59.627-08:002017-11-09T09:52:59.627-08:00I think I have just tried for so long to be the st...I think I have just tried for so long to be the strong woman that even my husband of 19 years didn't realize. Reality check - I can't do it all and during a flare I can't even stand to be around most people because I can't contribute or it just seems like so much chatter and I can't sort it out. I do get weird things like the muscles in the upper part of my legs cramp. I take potassium and get blood work checked regularly so it's not that but I can actually see the muscles contracting and it's so painful. Also restless legs that hurt and can't get comfortable. The one place that always hits hard during a flare is the shoulders right over the joint the skin is so tender it hurts to have clothes on it. That's my warning that it's about to get bad.<br />Anyway I am glad you had the courage to educate others. I too get the frenzy after a flare. In fact I am holding back and trying to pace myself today since it's a half way good morning but all I see is what needs to be done! Take care.<br />Crystal Hankeynoreply@blogger.comtag:blogger.com,1999:blog-2283658887503348180.post-88678298126334225702017-11-09T06:59:54.786-08:002017-11-09T06:59:54.786-08:00Oh Debbie, I believe you, when you say that it'...Oh Debbie, I believe you, when you say that it's hard to cope with that problem. We are praying for you and I'm sure that God will give yoy strenght and will help you.<br />Be safe, be strong and receive a big HUUUUUUUUUUUGGGGG from this side of the ocean!<br />:)Paula Alexandra Santoshttps://www.blogger.com/profile/16010457703989545204noreply@blogger.comtag:blogger.com,1999:blog-2283658887503348180.post-4636838070827638232017-11-09T06:29:56.219-08:002017-11-09T06:29:56.219-08:00Bless your heart! Those days must be so discouragi...Bless your heart! Those days must be so discouraging. But always remember that joy comes in the morning!! There will be more good days ahead. I love seeing the picture in your blog header pop up when I am waiting for your page to load. Those boys make me smile!Little Penpenhttps://www.blogger.com/profile/01374048900216199298noreply@blogger.comtag:blogger.com,1999:blog-2283658887503348180.post-70041056237268124212017-11-08T20:58:18.767-08:002017-11-08T20:58:18.767-08:00I have to say that your description has convinced ...I have to say that your description has convinced me that I NEVER, EVER want to catch that!!! I have my own chronic issues to deal with, though. So, like the rest of you, I just go one day at a time. <br /><br />I do understand how easy it is to get down in the dumps. When you feel like you can't even eat anything without getting sick (the mind is a crazy thing, I obviously eat plenty-just not gluten--LOL), or that with diabetes your blood sugars are up because you were not diligent about food choices (Lots of getting mad at myself for that), and so on---it all makes a person feel bad. So, if I was laying in bed without being able to lift my arms without pain, or couldn't walk across the room----WOW!!! It would be super hard to stay upbeat! So, all of you with this condition--hang in there. It sounds like you have a lot of support, as I do. I'm glad for that.Beckyathomehttps://www.blogger.com/profile/11105835394158145451noreply@blogger.comtag:blogger.com,1999:blog-2283658887503348180.post-62900531086037447882017-11-08T19:20:51.128-08:002017-11-08T19:20:51.128-08:00Thank you Billie Jo. My heart just goes out to yo...Thank you Billie Jo. My heart just goes out to you. (((((HUGS)))))Debbiehttps://www.blogger.com/profile/16449564619872452771noreply@blogger.comtag:blogger.com,1999:blog-2283658887503348180.post-82325325975297477062017-11-08T18:53:33.919-08:002017-11-08T18:53:33.919-08:00My friend,
I am so very sorry for your pain.
And f...My friend,<br />I am so very sorry for your pain.<br />And for the anxiety as well.<br />I know the anxiety cycle all too well.<br />Prayers and hugs. : )Billie Johttps://www.blogger.com/profile/13515311983458309772noreply@blogger.comtag:blogger.com,1999:blog-2283658887503348180.post-18455355509191041372017-11-08T18:09:54.753-08:002017-11-08T18:09:54.753-08:00((((((HUGS)))) Chrissy. I am so sorry that you ar...((((((HUGS)))) Chrissy. I am so sorry that you are in the middle of a crash and flare. Please be kind to yourself and rest. Praying for you.Debbiehttps://www.blogger.com/profile/16449564619872452771noreply@blogger.comtag:blogger.com,1999:blog-2283658887503348180.post-47478876632121547982017-11-08T17:20:15.678-08:002017-11-08T17:20:15.678-08:00Totally over 100% been there, can relate, and tota...Totally over 100% been there, can relate, and totally get it. I am in the middle of a flare and crash at the moment. I can totally relate to the feeling to go crazy once I feel a little better and then crash again. A ugly cycle. Mrs. Chrissy Thttps://www.blogger.com/profile/09516870555452352931noreply@blogger.comtag:blogger.com,1999:blog-2283658887503348180.post-6263234205401118162017-11-08T16:20:34.645-08:002017-11-08T16:20:34.645-08:00Hi Cheryl and thank you. I did cut out grains and...Hi Cheryl and thank you. I did cut out grains and gluten for awhile and it did not make any difference. There are certain nuts though that I find make me feel ill. I also have to avoid fatty foods since they trigger my IBS big time. Be blessed my friend!Debbiehttps://www.blogger.com/profile/16449564619872452771noreply@blogger.com